When people go online searching for health information, they’re often also looking for someone who’s grappling with the same problem. That’s especially true if they’re dealing with a rare disease.
The Internet provides a gateway to all kinds of medical facts and also to people who have come by that information the hard way.
That’s the news from a survey just out from the Pew Internet Project and the California Healthcare Foundation. They found that people dealing with rare diseases are the undisputed power users of health information online.